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Archive for the ‘Charity’ Category

We recently received a thoughtful note in response to this post about our nephew, Little J. A mother and reader wrote to tell us her two-year old son also has a rare undiagnosed syndrome. He attends The Children’s Center in Augusta. The center offers kids with disabilities and their families educational and therapeutic support through a variety of programs. The center is hosting a fundraising event called The Chili Chowder Challenge next weekend, and asked if we could post about it. We’re wondering how we missed this incredible fundraiser in the past!

ImageSome call the Children’s Center Chili Chowder Challenge the best in the state, and it’s not uncommon for families to return year after year. Even if you don’t live anywhere near Augusta, you’ll want to make the trip. Where else can you enjoy delicious food from local restaurants and entertain your children for a few hours? You’ll find craft tables, parachute play, live music, storytelling, face painting and donut decorating, to name a few. While the kids are having fun, you can participate in the live auction or check out the goodies at the silent auction tables.

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Last February, Cute Potato held its first online fundraiser, called Show Your Love: 14 Days of Giveaways for the Barbara Bush Children’s Hospital. If you recall, we kickstarted the fundraiser for our nephew, Little J, who was born with complications.

At the time, it was too difficult to share Little J’s full diagnosis. Our family learned he has a rare syndrome called Peroxisomal Biogenesis Disorder (PBD). A mouthful, right? The genetic disorder touches 1 in 50,000 children and affects all major systems of the body.

As you can imagine, the CP family was heartbroken by this news. We adore Little J and we want all good things for his life. With PBD, as with many rare diseases, there are a lot of unknowns. The disorder affects every child in different ways, and some children don’t survive past their first year.

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Our favorite little guy – at age one.

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Our Show Your Love Fundraiser for the Barbara Bush Children’s Hospital was a big success! Thank you to all the wonderful people who donated their time and effort to make this event possible. Much gratitude goes to designer Vivian Page for the beautiful poster she created for the event. Many thanks to the businesses who donated to the fundraiser: Rainbow Toys, Down East Books, Maggie’s Naturals, Cathy Davis, L.L.Bean, Wolfe’s Neck Farm, Gather, Minka, Peekaboo Children’s Center, Pitter Patter, Islandport Press, Two Fat Cats, Bella Luna Toys, Sheabella Tutus, and Toots Ice Cream.

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Illustration by Richard Haines

Also, thank you to all of you fabulous readers, family, and friends who donated to the hospital. MP will get in touch with the winners over the next few days. Until then, Happy Valentine’s Day from all of us at Cute Potato!

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MP doesn’t typically get personal on these pages, but today, as she prepares to launch Cute Potato’s first online fundraiser for The Barbara Bush Children’s Hospital, she thought it would be worth sharing a CP family story with you.

Meet Jack.
In August, MP’s nephew Jack was born weighing 6 lbs. 10 ounces, looking healthy, fabulous, and ready to greet the world. After a few days in the hospital, Jack’s mom and dad, both new parents, were looking forward to bringing their baby home to begin their lives together as a family. 

MP meets her nephew for the first time.

MP meets her nephew for the first time.

During his first week, Jack lost weight. He was nursing, but struggling to do so. His mom grew concerned and checked in with Jack’s pediatrician. He told her not worry. Babies often lose weight when they first arrive home. Then Jack lost more. He wheezed when he nursed. He pulled his legs to his belly after feeding and cried. His parents decided to call a lactation consultant. When the consultant heard the baby nurse, she recommended he be brought to the hospital immediately.

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